I know that you all may be curious as to what is going on and how Mom’s doctor’s visit went…
I don’t enjoy delivering bad news, but the doctor did not have good things to tell us on Wednesday. If mom were to have any more chemo at this point, it would do more harm than good and potentially be lethal. Her hemoglobin (blood supply in her body) over the week has plummeted from 9.0 to 5.9, and a normal person like us should be at minimum 12.0. So the doctor said with her blood supply so low, as well as her platelets (blood clotting in your body), any chemo treatment might lower her blood counts and may cause a stroke. We were saddened by the news, but were prepared going in, that this most likely would be the outcome.
We signed her up for Hospice, as we want to make her as comfortable as possible. The first step to allow her more comfort is draining more of the fluid in her stomach and legs. Rather than go to the hospital for draining each week, we decided to have a catheter placed in her abdomen. This will allow us to drain the fluid at home and more often, when she starts to get uncomfortable. The procedure was this past Thursday.
The procedure went well, however, we all know things don’t ever go according to plan. After the procedure was complete, the doctor came out to talk with me and let me know it went according to plan. When they were draining the fluid, there was blood draining as well. This is not what we wanted to hear and the doctor told me it was probably due to the cirrhosis in her liver. Her liver and spleen are not filtering the blood, due to the scarring of the liver, thus all the blood is diverting to her stomach. This really shook us up. The draining had some blood return as it was drained, and her hemoglobin was low, so dad and I decided to go ahead with a blood transfusion. We understood that giving her blood would not raise her blood levels, but at least it would give her a little bit of energy and color in her face.
So after the catheter procedure, they cross matched her blood type and then took her up to a private room for the blood transfusion. She received two bags, with each bag taking a minimum of 3 hours. By the time we were done and discharged, it was 2:30 in the morning. Quite a day and night, at the hospital, beginning at 11:00 AM! Her night was rough, but worth it, because the next morning she had more color in her face and seemed to have perked up in attitude.
Ending on good note, the past few days mom has been awake a lot more and holding good conversations. Mom still has her sleeping episodes during the day, but wants to get up and move around more. She still has her sense of humor. Long story short, she had a fall the other day and her and my dad always joke that she is pregnant due to her swollen stomach. Well after the fall she looked up at my dad and said, “Oh, I hope I didn’t hurt the babies!” Guess you had to be there but my dad and I just cracked up.
That is all for now. We greatly appreciate your prayers.
5 comments:
It has been a wonderful visit w/you Susan and I was so happy to be ale to come be with you. You truly are a Survivor and keep thinking positive as you always do, as it will brings the strength of the Universe to you. Some of our stories of our childhood past would have flipped mom & dad like a pancake in a griddle! What times, what memories when people unit and find peace together.
I love you dearly and will come see you again soon! Think Alpaca!! Much love, Bro Mark
Thanks for being such a superstar Katy!
God bless you Susan and I'm so glad you still have your sense of humor. That is important! I am in an airplane at the moment and since I'm closer to God up here, I'll put in an extra special prayer for you. Love to Rick, KT, J and entire family. You're in my thoughts. Thanks so much KT for keeping me informed. Love you. Trudy
I'm guessing that it was about 50 years ago when we cruised down your driveway, wearing our fabulous rollerskates (skate keys around our necks) rolling past your Uncle to giggle when he said.....bread and butter! So innocent! You were my first best friend...we had it good!!! It's all good. My thoughts are with you and your wonderful Katy and Rick - the best man. I love you old friend and wish I could visit to hold your hand, laugh at the old days and giggle like little girls. And,by the way, that tiny sausage of yours is way too cute! Tell Jay & Thuy that they did a great job! I love you Susie. Spaghetti forever.
Katy, please call us. If you need a break or a meal or anything we would love to help and my mom is so excited you are back in STL. Please give us a call. Love, Jill and Susan
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